Rare lung disease research: strategies for improving identification and recruitment of research participants
S Gupta, AM Bayoumi, ME Faughnan - Chest, 2011 - Elsevier
Research in rare lung diseases faces methodologic limitations by virtue of the small number
of participants available to be studied. We explored several strategies that may improve
researchers' ability to identify and recruit research participants with rare lung diseases. We
provide an overview of strategies based on available evidence, previously used
approaches, and reasoning. First, disease detection is generally poor and may be improved
through strategies targeted at primary care practitioners or directly at patients, thus …
of participants available to be studied. We explored several strategies that may improve
researchers' ability to identify and recruit research participants with rare lung diseases. We
provide an overview of strategies based on available evidence, previously used
approaches, and reasoning. First, disease detection is generally poor and may be improved
through strategies targeted at primary care practitioners or directly at patients, thus …