This paper describes the Data Registry System of the Cystic Fibrosis Foundation. Through
this system an annual up-dated and corrected data base has been prepared for cystic
fibrosis patients seen at USA Centers from 1966 through 1972. From the data base, a large
number of life table studies are calculated. A study is specified by its data base, the
observation period, analysis year (age year or year since diagnosis), the Centers included,
and the condition of patients at birth, and possible additional factors such as sex, age at …